HHT Awareness Month June 2019
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide. It is estimated that 90% of people affected are undiagnosed.
After a life of uncontrollable nose bleeds and treatments that failed to stop them over the course of several years, I was diagnosed with HHT in 2011. In addition to nosebleeds, I had malformed blood vessels in my lungs that put me at risk of stroke or rupture. The procedure to block the vessels is painless, but I will be monitored the rest of my life and its expected to spread thru other organs as I age.
I am working with the Cure HHT foundation
to help spread the word on this rare, genetic, dangerous disease. During the month of June I will go into details of my story, the treatment, and facts on this disease. This will be to help the medical community with earlier identification and the general public on symptoms that go beyond just nosebleeds.
You can learn more at https://curehht.org